Notice of Privacy Practices
Seattle Clinical Research Center is committed to protecting your privacy and ensuring the confidentiality of your personal information. By participating in our research, you consent to the practices outlined below, in compliance with the Health Insurance Portability and Accountability Act (HIPAA) and other applicable laws.
Information We Collect We collect personal information necessary for research, including:
- Personal Identification: Name, contact details, demographic data.
- Health Information: Medical history, treatment details, and health-related data.
- Research Data: Survey responses, clinical test results, and observations.
How We Use Your Information Your information is used for:
- Conducting research and data analysis.
- Improving research processes and patient care.
- Complying with legal and regulatory requirements.
How We Protect Your Information We implement administrative, physical, and technical safeguards to prevent unauthorized access, disclosure, or alteration of your data. Access is restricted to authorized personnel trained in HIPAA compliance.
Sharing of Information We do not share your information except:
- With Your Consent: If you provide explicit authorization.
- For Research Purposes: Anonymized data may be shared to advance scientific understanding, as outlined in study-specific consent documents.
- As Required by Law: To comply with legal obligations.
- With Business Associates: Contractors assisting in research operations must adhere to HIPAA standards.
Your Rights Under HIPAA You have the right to:
- Access, correct, or request restrictions on your personal data.
- Obtain an accounting of disclosures.
- Request confidential communications.
- Withdraw consent without affecting your care.
Data Retention We retain health records for at least 10 years after trial completion, following state and federal guidelines. Data no longer needed is securely disposed of.
Children’s Privacy We do not collect information from individuals under 18 without parental consent. Unintentional collection will be corrected promptly.
Changes to This Policy We may update this statement periodically. Revised versions will be effective upon posting.
Contact Us For questions about this Privacy Statement or your rights, contact: Seattle Clinical Research Center 633 Yesler Way, Seattle, WA 98104
206-522-3330
Effective Date: May 30, 2025
